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About Us

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Who are we

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Rachel Duquesnois

Chairperson

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Niall Rochford

Director

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Pamela Deasy

Director

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Our Vision

An Ireland where everyone with Pancreatic Cancer survives and thrives.

Our Mission

To unapologetically demand a significant increase in survival rates for people with Pancreatic Cancer and improve the experience of those with Pancreatic Cancer, their families and support networks.

We do this by working collaboratively with those diagnosed with Pancreatic Cancer, their families, support networks, volunteers, health and social care professionals and researchers.

Our Aim

1.
Earlier and faster diagnosis, and established pathways to Pancreatic Cancer-focused treatment.

2.
Greater access to screening for at-risk individuals and the development of initiatives to support early detection.

3.
Improved access to clinical trials, and tumour profiling and genetic testing for all patients.

4.
Better access to information about Pancreatic Cancer symptoms, treatments, patient care and how to navigate the health system.

5.
Acceleration of research into Pancreatic Cancer and its treatment, which will be supported by evolving data.

6.
More support in navigating a diagnosis of terminal illness for patients, their families and support networks.

Our Objectives

1.

Raise awareness about Pancreatic Cancer:

  • among GPs by providing CPD training and online resources in collaboration with the Irish College of General Practitioners
  • among the general public by providing information online and on social media.

2.

Advocate for better healthcare in ways that enable patients’ voices to be heard, on issues such as:

  • better pathways to treatment
  • standards on referral and treatment timescales
  • tumour profiling and setting up of a Biobank
  • establishment of a screening programme and
  • funding for clinical trials.

3.

Develop a range of supports for people with Pancreatic Cancer, their families and their support networks, which will include:

  • providing literature in healthcare settings
  • developing online resources
  • funding hospital-based Pancreatic Cancer nurses
  • providing counselling and support for patients, families (including children and young people) and their support networks.

4.

Support research into Pancreatic Cancer and its treatment, which will include but is not limited to:

  • funding a patient survey to gather data on symptoms, wait times and patient experience
  • funding the setting up of a Pancreatic Cancer Biobank to inform treatment, inform prognosis, decide eligibility for clinical trials and indicate familial risk in line with international best practice
  • funding the setting up of a national database of people with Pancreatic Cancer.

Our Pledge

“We will go through the gate. If the gate is closed, we will go over the fence. If the fence is too high, we will pole vault in. If that doesn’t work, we will parachute in. But we are going to get it done.”